我从新疆来丨为罕见病群体“撑伞”的“儿子娃娃”|男男吹潮自慰chinese
来自新疆乌鲁木齐的00后艾力亚尔·艾克排尔，从被他人帮助的FSHD罕见病患者，成长为积极投身罕见病公益活动的行动者，始终践行着“让罕见被看见”的初心。他通过自媒体展现“儿子娃娃”的多元可能，始终坚信会有越来越多爱的阳光，照亮每一个“罕见”人生。
changniandaqiudezhangxianshenggaosu《huanqiushibao》jizhe：“zaizhengqinwenduoguanqiandezhejinian，wangqiuyundongzaidazhongcengmianyizhishixiangshangzoudetaishi，jiaruwangqiuyundongxingliezhongderenbuduanzengduo。”zhangxianshengfenxi，zheyexugenwangqiushigewangyundongyouguan，yincizaiyiqingqijianshoudaohuanying。常(chang)年(nian)打(da)球(qiu)的(de)张(zhang)先(xian)生(sheng)告(gao)诉(su)《(《)环(huan)球(qiu)时(shi)报(bao)》(》)记(ji)者(zhe)：(：)“(“)在(zai)郑(zheng)钦(qin)文(wen)夺(duo)冠(guan)前(qian)的(de)这(zhe)几(ji)年(nian)，(，)网(wang)球(qiu)运(yun)动(dong)在(zai)大(da)众(zhong)层(ceng)面(mian)一(yi)直(zhi)是(shi)向(xiang)上(shang)走(zou)的(de)态(tai)势(shi)，(，)加(jia)入(ru)网(wang)球(qiu)运(yun)动(dong)行(xing)列(lie)中(zhong)的(de)人(ren)不(bu)断(duan)增(zeng)多(duo)。(。)”(”)张(zhang)先(xian)生(sheng)分(fen)析(xi)，(，)这(zhe)也(ye)许(xu)跟(gen)网(wang)球(qiu)是(shi)隔(ge)网(wang)运(yun)动(dong)有(you)关(guan)，(，)因(yin)此(ci)在(zai)疫(yi)情(qing)期(qi)间(jian)受(shou)到(dao)欢(huan)迎(ying)。(。)